It’s soon 24 months or 2 years since I gave birth to my twin daughters Ananda Mae and Amya Mirica – Hope & Passion.
A happy 2nd birthday for Ananda Mae and part of us will be sad and missing the presence of her identical twin sister…
Just today I came across an article about Jamie, a US congress woman’s baby, born in July this year with the same condition Hope was born: Potter’s syndrome. Another mother like me who received the painful medical ‘death sentence’ while still pregnant with their baby, praying for a miracle, gathering ‘Hope’ and trying not to lose faith in the apparently impossible. I read the words of Kelly, another mother who lost her boy to Potter’s syndrome:
While I rejoice with this mother, and for the beautiful miracle of this life, the hard questions weigh on my mama heart all these years later. The goodbye stings fresh. The longing. The questions. I asked why they couldn’t just put some fluid in there. I asked why they couldn’t just get my boy a kidney. I asked. And, there were no answers for me this side of heaven. Nor, for the thousands of other parents who asked those questions. They said there was nothing they could do.
Just like Kelly I’m happy for Jamie, her husband and their daughter and hope that many babies with this condition may in future survive and live.
It is however also painful to remember the exact same questions we asked and options we discussed with the doctors while my daughters were both in NICU on their first day of life: dialysis & kidney transplant options. It’s with sadness in my heart that I hear my husband’s words: ‘Well it’s too late for our daughter’.
The article mentioned above was written end of July which is now almost a month ago. I do hope that Jamie’s daughter is alive and growing well. And I do mourn for the dreams and hope we had for our HOPE that we were never able to realise. With all the prayers for a miracles. With all the support from friends and family who also prayed for a miracle. And full heartedly I agree with Kelly again when she says:
My children, and yours. Miraculous gifts. No matter how long they were here.
- Congresswoman’s Miracle Baby May be the First to Survive Potter’s Syndrome | LifeNews.com (grindaline.wordpress.com)
- Rep. Herrera Beutler’s baby first to survive Potter’s Syndrome (kgw.com)
- Congresswoman’s Miracle Baby May be the First to Survive Potter’s Syndrome (canadafreepress.com)
- Miracle Baby: Congresswoman’s Daughter Defies Doctors’ Predictions She Would Die | LifeNews.com (grindaline.wordpress.com)
- Day of Hope (carlymarieprojectheal.com)